http://192.168.2.6/english/野天堂上的感谢.mp3

On Friday mornings ,we bring you StoryCorps when people across the country share stories about their lives. And today two parents remembered their daughter. Liddie Horsey was born with a rare genetic disorder. It's called Cornelia de Lange Syndrome. It held back develope mentally. At eight years old, Liddie was still fed by her parents. She could only speak one word: Mama. That's the same year she became ill and died. Here her parents Thom Horsey and Karen Manning Horsey talked about how Liddie changed their lives.

Oh, I'm so mad we didn't take more videos now of her. You know, but who would know? It's so funny to look at when she first started walking. When she was 28 months, I think when she first started walking. It was over two years right now.

Right! Because they said if she didn't walk by 24 months, (then she won't walk) then she won't walk.

And as usual, when she did things on her own time schedule. And at 28 months, remembered she started to walk around the coffee table(Right, for hours and hours.) And then, for some, she started to take.She was just for long to make circles and circles ( Yeah.) and bend things on that table. And then she started to take her steps and she was so happy. And that's when I knew to * throw out those stupid milestone books. And that Liddie would just be Liddie. And I was just be happy and enjoyed seeing every little thing she did and not to worry about the stupid books or the stupid milestones. Be sure you can't live your life measuring your child against the norm.

I think I remember how she developed to hear. She learned to walk into the classroom where right to her chair. And just said "right down", she pulled it out. She knew exactly what to do. And I not to see Liddie not speaking as a lost. Because she was so expressive, I mean, she was always laughing and giggling. And you know, it doesn't stike me as that was anything that was missing in a way. Because she was so, just active and expressive and, oh, God, she laughed so much, Jesus, you know.

And that's the thing I miss the most, yes. Without speaking, how her soul could fill the house, and you just knew she was there.

I could tell where she was by the sound of the word, whatever. She was being there, you know.

If you think about it, Thom. In eight years, she profoundly changed who you and I are and how we live our lives. If she was sitting here, what I would say is: Thank you for making me your mom! (Yep!) It was the greatest experience I will ever have.

Karen Manning Horsey and Thom Horsey at StoryCorps in Richmond, virginia. All StoryCorps interviews are archived at The Library of Congress. And you can subscribe to the projects' podcast by going to our website NPR.org.